USTMA Research

Research Studies

Browse structured study records across the USTMA research network.

P200Active registry

A prospective longitudinal clinical registry and biobank supporting multicenter iTTP research across the USTMA network.

NeSTMulticenter cohort study

A multicenter study evaluating long-term neurologic, cognitive, quality-of-life, and patient-reported outcomes after acute iTTP.

R300Retrospective registry

A retrospective registry studying pediatric immune and congenital TTP using clinical and treatment data from participating institutions.

R400Retrospective study / development

A multicenter retrospective study focused on presentation, management, and short- and long-term outcomes in complement-mediated TMA.

R100Locked dataset / available for analyses

A completed retrospective adult iTTP registry that serves as a resource for approved secondary analyses and publications.

Prospective TMA RegistryResearch development

A prospective research concept designed to collect standardized longitudinal clinical data and biospecimens across TMA populations.