Patients & caregivers

Whatever stage you’re in, start here.

Whether you are navigating TTP, CM-TMA/aHUS, or a TMA diagnosis that is still being clarified, USTMA brings practical information, experienced care, peer connection, and research opportunities together in one place.

Newly diagnosed? Choose your pathway Find TMA care Talk with an Ambassador

Need urgent medical help? If you are acutely ill or think TMA may be recurring, contact your treating team or seek emergency medical care. USTMA resources are educational and do not replace urgent evaluation.

Members of the USTMA community together at a patient meeting

You are part of a community.Patients, families, clinicians and researchers learning together.

Choose your diagnosis pathway

What are you navigating?

TTP and CM-TMA/aHUS are represented as parallel pathways. If you are not sure, start with the third option.

Newly diagnosed

First-step guides for both major USTMA patient pathways

Each pathway follows the same structure: basics, evaluation, questions, follow-up, support, and experienced care.

Understand

Learn about TMA

Clear information first. Deeper resources when you’re ready.

Care & practical support

Whatever stage you’re in, start here.

What are you navigating?

TTP

CM-TMA / aHUS

I don’t know which TMA I have

First-step guides for both major USTMA patient pathways

Newly diagnosed with TTP

Newly diagnosed with CM-TMA / aHUS

Diagnosis still unclear?

Learn about TMA

TTP

CM-TMA / aHUS

Videos & education

Resources for every diagnosis

Find TMA Care

Medical Alert Card

Patient Ambassadors

Participate in research

Events & meetings

Patient Stories