USTMA
USTMA publication • USTMA Patient-Centered Research

The Patient-Reported Outcomes Measurement Information System perspective of adults with long-standing atypical hemolytic uremic syndrome

Anne Hubben; Jenna Brown; Linda Burke; Len Woodward; Clare Martin; Keith McCrae; Shruti Chaturvedi

Research and Practice in Thrombosis and Haemostasis • 2025

This study examined patient-reported health domains in adults with longstanding atypical hemolytic uremic syndrome. USTMA supported recruitment through its mailing list and hosted REDCap infrastructure used for the study.

View on PubMedPublisher pageDOI: 10.1016/j.rpth.2025.103224

USTMA members connected to this publication

Clare MartinKeith McCraeShruti Chaturvedi