A living network, in motion.
Research, community events, education, and organizational updates in one place.
Prospective TMA Registry
A prospective research concept designed to collect standardized longitudinal clinical data and biospecimens across TMA populations.
R100 — Retrospective Adult iTTP Registry
A completed retrospective adult iTTP registry that serves as a resource for approved secondary analyses and publications.
R400 — Complement-Mediated TMA Study
A multicenter retrospective study focused on presentation, management, and short- and long-term outcomes in complement-mediated TMA.
2026 USTMA Patient Meeting
USTMA’s annual national patient and community meeting in Columbus, bringing patients, families, clinicians, advocates, and partners together.
2026 USTMA Investigator Meeting
A research-focused meeting centered on USTMA programs, infrastructure, early-career investigators, and developing TTP and CM-TMA protocols.
Meeting the Management Challenges of cTTP in Pregnancy
A multidisciplinary meeting on the management challenges of congenital TTP in pregnancy.